The Story so far.....
Our beautiful 4 yr old boy has been diagnosed with a rare and aggressive form of cancer.
Two weeks before Christmas I took our son Mannix, to the local GP for what I believed would be a prescription for an antibiotic. Instead, an ambulance was called and my little boy visited three different hospitals, had countless cat scans and MRI’s, followed by two biopsies. Six days later we were given the devastating news that our little boy has Clear Cell Sarcoma stage 4. Mannix has two tumours, one on his kidney and the second behind his right eye.
At present, Mannix has started treatment in Our Lady’s Children's Hospital, Crumlin. Mannix’s treatment plan consists of 30 weeks of aggressive combination chemotherapy, surgery to remove his kidney and one of the tumours and radiation treatment to tackle the second tumour. He also must get daily injections to help improve his platelet count, called G.C.S.F.
His condition will be assessed at the end of treatment. Unfortunately the chance of full recovery is low and the chance of relapse with Clear Cell Sarcoma of the Kidney is very high. This leads to a less than 40% survival rate. This is our worst fear.
In this case, we hope to be able to bring Mannix to the United States and involve him in clinical trials. These are not available in Ireland, neither is funding for this kind of treatment. For this reason, we are fundraising.
Ways you can help:
- Hold a fundraising event (sponsored walk/swim/run/coffee morning/cake sale, etc).
- Make a collection in your place of work.
- Spread the word amongst family and friends by email.
- Make a personal donation.
- Visit our appeal website and make an donation online.
